Monday, August 4, 2008

news, news, and more news...

A lot has happened in the last 3 weeks since i wrote my last blog. wow. it's only been 3 weeks. seems sooo much longer than that.

Raptors games have been going on like normal. Lots of fun for dad and I. The season is in the second half already, meaning it's almost over. I sure am going to miss baseball when it's over. It's so much fun to go sit in the stands in our seats and talk with the people around us that we have known for years, just from going to the games. Dad mentioned once that he doesn't care who we're playing, or if we win or loose, it's just nice to go watch a good game. I would have to agree with him on that, however i do love it when our team wins.

I have my next doctors appointment next week. I had more blood tests last week, so we shall see if the cell cept is working, and what my levels are at and such. as long as my lungs don't get worse, and i feel better, i don't care how many pills i have to take. sure... i say that now. The next appointment we will be talking about maybe upping the dosage. and doing more blood work. Always, always blood involved. After all this time, i still can't watch them poke me. lol

I'm finally starting to feel good. I had a week there where i just didnt' want to get out of bed cause i just felt like crap and wanted to sleep, yet i couldn't sleep, and wasn't sleeping well at night, even with my sleeping meds. *shrugs* yeah tell me about it. but i'm feeling good now. I feel like i've got a little more energy, and that things are actually starting to be good again. Maybe the meds are actually working?

Um... I've hit the donut hole in my prescription drug coverage. If you don't know what this is, let me explain a little bit. I only get coverage on my meds for the first $2,500 that is spent on drugs. that's my cost and their costs. Then i have to pay for a while, don't know exactly how high, but it's at least a month or two, and then they will cover my drugs again. My meds cost $1,100 a month now. cell-cept alone costs $900 a month, and that is if we don't up the dosage again, if we do it will go up by another $450. I don't make that much money a month from social security. so yeah. I'm going to have no money for a while. So birthday gifts may be slow for a while. like they weren't slow enough as it was. *frowns* sorry guys.

And the last and final news... i think... at least for now...

Dad got a job in Glendale, Arizona. We are moving.

It's an exciting, yet scary thing. We will be closer to Jeremy, Jenn and the kids, yet further away from Emalee (need to convince her that she needs to move too) It's lower altitude, so maybe i can get off the oxygen. It's warmer. so no more freezing my ass off in the middle of the winter. I have to find new doctors, and hopefully one that will continue with our current course of treatment. When I see Dr. Dames next week i'm going to tell her, and i'm sure that she will find me someone and help me transfer all my stuff. but it's still scary. I finally found someone who wants to treat this stupid disease and not just tell me there is nothing they can do. I'm really going to miss her.

I'm also going to miss my friends and family here. Erin is heartbroken. She wants to come with us. The poor thing. Our home is her sanctuary, and we are taking that away from her. But, i have tons of friends and family in Arizona. And Glendale is only 30 miles away from Jenn and Jeremy and the kids. so we'll get to see a lot more of them, and get to see the kids grow up.

Dad has to report to work on the 2nd of September. Mom and I are going to stay here until the house sells. It goes on the market on the 18th, or at least that is the day the sign goes up in the yard. Dad is doing a lot of work to this place to get it ready to sell. He's been working so much around here that he's just totally exhausted by the end of the day. Wish there was more that i could do to help. But i'm kinda useless at the moment when it comes to much.

I think that's all the news for now. I hope all is well with all of you out there in blog land. My love to you all!


  1. I am sad you guys are leaving too! I will really miss you! I am glad you are feeling better. I hope it lasts!!!! Love you!

  2. Sorry to all in Utah, but I'm excited to have you here in AZ. Yay Fred for transferring to Glendale!! Hope the house sells quick and good luck with the meds thing.

  3. You're moving?! That's crazy!! I wish you and the fam the best of luck in Arizona! I hope that weather is a little nicer on you! You deserve that! Good luck with your treatments and finding money for meds. You are such a strong girl, you can make it through anything! Keep chuggin along! :)