Saturday, June 21, 2008

long lost update...

Okay… so I’m such a noob. It’s been such a long time since my last post, and yeah. That’s so my fault.

We went to Oregon the end of may to visit with Grandma Kay and dad had to put a new roof on her house for her. We enjoyed a wonderful week. It was cool there, and misty a lot. But really relaxing and nice.

The great thing about it, I didn’t need to use my oxygen while I was there. I did get a headache, but then I would go take a nap with my oxygen and be fine the rest of the day. It was great. I could actually breath.

While there, 3 days into a 10 day trip… Harvey died. Yes, my computer died. I killed yet another hardrive. How I keep doing that I haven’t got a clue.

So, needless to say I did a lot of sudoku puzzles and “read” 4 books while I was there. We actually did end up leaving 2 days early so that dad had a few days to rest at home before needing to go back to work.

My 6th and final chemo treatment was the first of June. I’m happy about this. My poor arm was getting pretty abused and was not wanting to have any more blood drawn or iv’s put in.

The treatment went well. I listened to a book on my iPod since Harvey was in the shop. I had a really bad night after the treatment. And a few days after. I’m happy to have that over with.

I had an echo done this past week. Everything looks fine, however my levels keep getting higher and higher. I have one scheduled in another 4 months. Just like normal

Um… PFT’s have gone down again. Yeah I know… not a good thing. My oxygen was upped from 2 to 3. I’ve had a constant headache that we thought was a side effect of the cytoxan, until I went to Oregon and the headache was gone, until I got to Boise. The headache was back. So not nice… so, upped the oxygen, and guess what. The headache is gone. I also will have to use continuous flow on my small tanks when out and about instead of just the pulse.

I have an appointment on Monday with Dr. Dames to start the new treatment. We are going to start going with Cell-Cept, and immunosuppressant that is commonly used with kidney transplants. I’ll give you more info about that after I have it on Monday. All I know about it is there are less side effects, and no more being sick. There is still a high risk of infection… but since that hasn’t bothered me so far I’m not worried about that.

Hope all is going well with everyone. I hope you are all having a nice hot summer.

Love you all!

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